Day by Day

Since my last post a lot has happened. We have had several doctor's appointments, new bacteria to beat, the CF walk and many new accomplishments to rejoice over. Madison is doing well for the most part. She does have bronchitis and is on 2 new antibiotics for that, one inhaled (which means another breathing treatment) and one oral.

Lets start on a happy note. The Great Strides Walk in Winchester was a big success. Thanks to everyone who donated! I know times are hard for everyone right now and all donations were greatly appreciated. Team Madison raised $3322.67 and the walk raised over $36,000.00. The state of Virginia alone raised over $700,000.00 to help find a cure for this disease. A big thanks to my sister-in-law, Kelly, for starting the team, my brother Shawn and his family for letting us invade their house for a few days, and all who walked for Team Madison. My Mom, Aunt Sherry, and Kylie (who I let miss an SOL) joined me in the 6 hour drive up 81 to be a part of this. The weather was nice, Madison did great, and we had a BLAST!!

Madison has 4 teeth now with 2 more coming in. For some reason, she likes to cut two at a time. She is also jabbering up a storm. She says ma ma more than anything, but of course you know that makes me so proud. She isn't crawling yet but rolls everywhere, or scoots backward. She is also sleeping better (most nights). She is growing up so fast and I am one proud Momma!!

A month ago we were told Madison had a bacteria called stenotrophomonas maltophilia. They put her on an antibiotic that really messed with her system. We went through her refusing to eat which caused her not to gain weight for a while. She also had horrible digestive problems which made her so uncomfortable. We were hoping that the antibiotics took care of everything but it didn't.

At the last UVA appointment, Madison had grown another bacteria and still had the steno. We ended up taking her to Wytheville and Dr. Gaston had a chest x-ray done. This is when we found out she has bronchitis. He is very puzzled by everything though. The bacteria she has should not have caused bronchitis which makes him think there is more going on. We will find out more next month after she completes all the meds.

I never thought I would look up to and admire a 10 month old but I do. She shows me everyday how strong she is and what a fighter she is.

God gave us this little girl to make us stronger, not only in life but in faith. We may have road blocks to attack every now and then, but He has always helped us through the hard times and always will. I praise His name through the good and the bad because I know HE will see us through anything!