Since my last post a lot has happened. We have had several doctor's appointments, new bacteria to beat, the CF walk and many new accomplishments to rejoice over. Madison is doing well for the most part. She does have bronchitis and is on 2 new antibiotics for that, one inhaled (which means another breathing treatment) and one oral.
Lets start on a happy note. The Great Strides Walk in Winchester was a big success. Thanks to everyone who donated! I know times are hard for everyone right now and all donations were greatly appreciated. Team Madison raised $3322.67 and the walk raised over $36,000.00. The state of Virginia alone raised over $700,000.00 to help find a cure for this disease. A big thanks to my sister-in-law, Kelly, for starting the team, my brother Shawn and his family for letting us invade their house for a few days, and all who walked for Team Madison. My Mom, Aunt Sherry, and Kylie (who I let miss an SOL) joined me in the 6 hour drive up 81 to be a part of this. The weather was nice, Madison did great, and we had a BLAST!!
Madison has 4 teeth now with 2 more coming in. For some reason, she likes to cut two at a time. She is also jabbering up a storm. She says ma ma more than anything, but of course you know that makes me so proud. She isn't crawling yet but rolls everywhere, or scoots backward. She is also sleeping better (most nights). She is growing up so fast and I am one proud Momma!!
A month ago we were told Madison had a bacteria called stenotrophomonas maltophilia. They put her on an antibiotic that really messed with her system. We went through her refusing to eat which caused her not to gain weight for a while. She also had horrible digestive problems which made her so uncomfortable. We were hoping that the antibiotics took care of everything but it didn't.
At the last UVA appointment, Madison had grown another bacteria and still had the steno. We ended up taking her to Wytheville and Dr. Gaston had a chest x-ray done. This is when we found out she has bronchitis. He is very puzzled by everything though. The bacteria she has should not have caused bronchitis which makes him think there is more going on. We will find out more next month after she completes all the meds.
I never thought I would look up to and admire a 10 month old but I do. She shows me everyday how strong she is and what a fighter she is.
God gave us this little girl to make us stronger, not only in life but in faith. We may have road blocks to attack every now and then, but He has always helped us through the hard times and always will. I praise His name through the good and the bad because I know HE will see us through anything!
Wednesday, July 20, 2011
Sunday, March 20, 2011
On Friday March 18, Madison had a checkup in Wytheville. Everything went great and there really isn't a lot to update. She is 17lbs 8 ounces and 25" long. They increased her enzymes because she had outgrown the other dosage. They also changed the time of one of her breathing treatments. We can also introduce a veggie. That should be interesting. I can't even get her to eat cereal, veggies may be difficult. Everyone was very pleased with how my chubby girl is doing.
Mommy getting love from her patient girl. We had to wait a little while because one of the patients had a problem. She was such a good girl the entire day.
Dr. Gaston checking Madison (notice the chubby belly). He calls her "Queen Madison." He was very impressed Friday at her weight gain and how well she eating.
Lauren and Madison after her checkup. She was telling her how proud she was of her and what a good job she is doing. She is right, Madison is doing great.
Madison has also started cutting teeth. Two teeth popped through her gum yesterday. Yes two in one day (exciting for mommy and daddy, painful for her). She is growing up so fast and doing wonderfully. Monty and I are so blessed to have her!
Mommy getting love from her patient girl. We had to wait a little while because one of the patients had a problem. She was such a good girl the entire day.
Dr. Gaston checking Madison (notice the chubby belly). He calls her "Queen Madison." He was very impressed Friday at her weight gain and how well she eating.
Lauren and Madison after her checkup. She was telling her how proud she was of her and what a good job she is doing. She is right, Madison is doing great.
Madison has also started cutting teeth. Two teeth popped through her gum yesterday. Yes two in one day (exciting for mommy and daddy, painful for her). She is growing up so fast and doing wonderfully. Monty and I are so blessed to have her!
Thursday, February 10, 2011
Long overdue update
Things have been pretty busy around here lately and I have not had time to update on Madison's health. She is doing GREAT! She is gaining weight well, eating very well, and most nights, sleeping all night long. She still has her days where things don't seem quit right, but the majority of the time she is a happy baby. Praise God!
Madison just turned 5 months old which is hard to believe. She is growing to fast and learning a lot of new things. She rolled over for the first time Monday. Of course, I didn't have the video camera nor my camera around when she did, and she hasn't done it since. She is sitting up on her own fairly well and grabbing for anything and everything she can get her hands on. Including my earrings, glasses, and and any jewelry I have on.
Last month we went to UVA and she had a great checkup. They changed slot of her meds but it has helped so much. She is now doing breathing treatments 3 times a day instead of one, but she isn't throwing up mucus like she was. That means it is thinning the mucus out which is what we want. They also started her on a new enzyme which has made a huge difference. She wasn't eating as often, until recently. She is outgrowing her dosage so when we go back, Dr. Gaston will probably increase that. They also believe that her acid reflux is not as severe now. However, CF patients usually are kept on something for acid reflux because it helps their digestion.
We go to Wytheville next week and I hope she gets a good checkup like she did last month. They may start her on rice cereal, fruits, and veggies. I just hope she does well with that, because when I give her meds to her now she spits out the apples.
I am sorry I didn't get to post any pictures but I will soon. Thank you all so much for your love, support, and prayers. I honestly believe Madison is doing as well as she is because so many people are praying for my precious little girl. Madison will continue to grow and get stronger and stronger. She is a fighter already and will continue to be.
Madison just turned 5 months old which is hard to believe. She is growing to fast and learning a lot of new things. She rolled over for the first time Monday. Of course, I didn't have the video camera nor my camera around when she did, and she hasn't done it since. She is sitting up on her own fairly well and grabbing for anything and everything she can get her hands on. Including my earrings, glasses, and and any jewelry I have on.
Last month we went to UVA and she had a great checkup. They changed slot of her meds but it has helped so much. She is now doing breathing treatments 3 times a day instead of one, but she isn't throwing up mucus like she was. That means it is thinning the mucus out which is what we want. They also started her on a new enzyme which has made a huge difference. She wasn't eating as often, until recently. She is outgrowing her dosage so when we go back, Dr. Gaston will probably increase that. They also believe that her acid reflux is not as severe now. However, CF patients usually are kept on something for acid reflux because it helps their digestion.
We go to Wytheville next week and I hope she gets a good checkup like she did last month. They may start her on rice cereal, fruits, and veggies. I just hope she does well with that, because when I give her meds to her now she spits out the apples.
I am sorry I didn't get to post any pictures but I will soon. Thank you all so much for your love, support, and prayers. I honestly believe Madison is doing as well as she is because so many people are praying for my precious little girl. Madison will continue to grow and get stronger and stronger. She is a fighter already and will continue to be.
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