However, when we got there she was absolutely wore out. She stretched and stretched before getting her pappy and going to sleep. 
After a sleepless night, we got her dressed (in another Uncle Shawn outfit) and us ready for what was going to be a long day. As we waited on Uncle Shawn, I sat and watched this beautiful little girl and wondered how anything this precious could be sick. 
After what seemed like hours after the test was done, they informed us that we needed to go to Kluge Children's Rehabilitation Center for further information. It felt like the world had come to a stand still and the only thing I kept thinking was "why". After a few moments, we headed off to meet what is going to become a second family, her CF care team at Kluge. They started her on her medication, gave us a ton of information, and 4 hours later we were headed back home to start this journey. (Madison before her second appointment at Kluge)
At her second appointment they put Madison on a breathing treatment. She does great with them too. A big thanks to Uncle Shawn and Tyler for getting the equipment to her so quickly.
Madison changed our lives the day she came into this world, and is still continuing to change it everyday. We have learned so much from this little girl already. We may not know why she was born with this, but one thing is for sure, she is a gift from God. He has wonderful things in store for this little angel, and I can't wait to see what it is.
